Crohn’s and Colitis Canada

Toll-free: 1-800-387-1479

Email: support@crohnsandcolitis.ca

crohnsandcolitis.ca

Person with pain in the stomach area

Crohn’s and Colitis Canada

Toll-free: 1-800-387-1479

Email: support@crohnsandcolitis.ca

crohnsandcolitis.ca

Crohn’s and Colitis Canada was founded in 1974 by a group of parents of children with Crohn’s disease or ulcerative colitis to learn more about these conditions and address the lack of funding for research in this area.

Crohn’s disease and ulcerative colitis are the two main forms of inflammatory bowel disease, a group of conditions that inflame the lining of the gastrointestinal tract, and disrupt the body’s ability to digest food, absorb nutrition, and eliminate waste in a healthy manner. Common signs and symptoms of Crohn’s and colitis include abdominal pain and cramping; severe diarrhea; rectal bleeding; blood in stool; weight loss and diminished appetite. As these are chronic conditions, people with Crohn’s or colitis will experience acute periods of active symptoms (a flare) and periods when their symptoms are absent (remission) throughout their lives. While genetics, environment, and an individual’s microbiome can be risk factors for Crohn’s or colitis, the exact cause of these conditions remains unknown. As a result, there is currently no cure.

“People living with Crohn’s or colitis experience a lot of pain. They might have hundreds of ulcers through their GI tract. They might be having diarrhea, bloody diarrhea, a lot of symptoms that, for most people, are very private,” says Angie Specic, VP of Marketing and Communications, Crohn’s and Colitis Canada. “They may not look sick, but on the inside, they are very sick.”

That was my experience, a lot of missed moments. 

Click to see video transcript

Angie Specic:

Crohn’s and Colitis Canada is a national volunteer-based charity focused on helping and improving the lives of people living with Crohn’s or colitis.

So ultimately our mission is to find the cure, but along with that, we want to improve the lives of the many people living with Crohn’s or colitis.

Shelby H:

The treatment I’m on costs $10 000 every treatment, and that’s every eight weeks, so it’s kind of limited in a sense, like, what I’ve been able to plan for my future. I’ve always had an idea of what I wanted to be when I grew up, but I kind of had to shift my mindset, because I needed to know that I could be at a job that I would have benefits.

Angie Specic:

People living with Crohn’s or colitis, experience a lot of pain. They might have hundreds of ulcers through their GI tract. They might be having diarrhea, bloody diarrhea, a lot of symptoms that, for most people, are very private.

And on the outside, they may not look sick, but on the inside they are very sick.

Shelby H:

My high school experience, I think, I look on it very differently than some of my friends who were healthy throughout the whole thing. I missed out on, you know, some proms, I wasn’t able to go, I had some surgeries. And so that was my experience, a lot of missed moments.

Angie Specic:

A lot of them feel isolated, and it’s really important that there is support for individuals in the community.

Shelby H:

People who are closest to you, like, your friends or your family, they try to understand it, but they don’t, and the only people who can, like, really talk to you about it, are the people who have lived it.

Angie Specic:

We have things like camps, scholarships. We have education and support, things we do around awareness and building content.

Shelby H:

Crohn’s and Colitis Canada connected me to a lot of other females who have the same type of fistulas that I do. Being able to talk with a group of women who experience what I experience, and then learning what works for them.

And then also kind of validated, like, oh, something wasn’t always wrong with me, I just really didn’t understand what was happening.

Angie Specic:

The partnership with Federated Health Charities is really important, it’s helped our organisation get more well-known. The donations help support local and national programs focused on kids, adults, education, awareness, research, as well as advocacy.

Shelby H:

I don’t think I’d be working fulltime, I don’t think I’d have the relationships that I have today. I don’t think I’d be on the treatment that I am today, if I didn’t have Crohn’s and Colitis Canada.

Angie Specic:

We’re a small charity, so the extension and the support that we receive is critical to help us get that exposure, the awareness to reach donors that might otherwise not engage with Crohn’s and Colitis, so the funding is critical for us.

Shelby H:

To all the donors, I just want to say thank you for helping me live the quality of life that I do today. I am on a treatment that was discovered by research. They’ve made a lot of great strides, but there is so much work that still needs to be done, and you could be a very valuable part of that, so thank you.

Today, Crohn’s and Colitis Canada is the largest non-governmental funder of inflammatory bowel disease research in Canada and the second largest worldwide. Their investment in research has led to the development of new treatments and lower rates of surgery for people with Crohn’s disease and colitis. Crohn’s and Colitis Canada also offers a wide range of programs and services that support children and adults living with Crohn’s and colitis. Programs like Camp Got2Go and Gutsy Peer Support provide a community of peers and mentors for people of all ages living with inflammatory bowel disease.

“Crohn’s and Colitis Canada connected me to a lot of other females who have the same type of fistulas that I do,” says Shelby, a client and volunteer with Crohn’s and Colitis Canada. For Shelby, talking with other women who had experienced what she was experiencing was an important part of coming to understand her diagnosis: “Oh, something wasn’t always wrong with me, I just really didn’t understand what was happening.”

Federated Health Charities has worked with Crohn’s and Colitis Canada since 1988 to raise funds and awareness of these chronic diseases.

“Ultimately, our mission is to find the cure,” says Angie Specic. “Along with that, we want to improve the lives of the many people living with Crohn’s or colitis.”

You can learn about Crohn’s and Colitis Canada at Crohn’s and Colitis Canada (crohnsandcolitis.ca).

Donate to Federated Health Charities today to support a healthier Ontario and improve the quality of life for everyone affected by inflammatory bowel disease.

Click on the button below to make a donation to Crohn’s and Colitis Canada through Federated Health Charities

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For general questions:

Sarah Wood
Executive Director
437-925-6227
sarah.wood2@ontario.ca

Address

315 Front St. West, 5th Floor
Toronto, ON
M7A 0B8

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For general questions:

Sarah Wood
Executive Director
437-925-6227
sarah.wood2@ontario.ca

Address

315 Front St. West, 5th Floor
Toronto, ON
M7A 0B8

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