Check out this video from our respected charity ALS Canada.


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VIDEO TRANSCRIPT

Kristine L:
I was told by a neurologist that he was pretty sure I had ALS. I think I went home and cried for days.

George A:
It’s a very debilitating disease and for her to come home and say that she had ALS, it was pretty devastating.

Tammy Moore:
When somebody is given the diagnosis of ALS, they’re given two to five years to live currently. For them, it will be progressive paralysis that they will be facing. So within their community, what they’re going to be finding is needing assistance with the journey as they navigate it.

Kristine L:
I can’t do any of the day-to-day things. I can still use a spoon, but that’s leaving. My husband, he does everything for me. He does all the laundry, the cleaning, the shopping, the cooking.

George A:
We both had to retire early from our jobs. You don’t see as many people as you once did, because you don’t get I and out as much as you used to do.

Kristine L:
Caretakers don’t get enough support. They suffer from this as much as we do.

Tammy Moore:
ALS Canada is directly responsible for people living with ALS here in Ontario, as well as for advocacy, and then for the national research program, so that there will be a future without ALS.

Kristine L:
I sort of looked up ALS Canada online, and then shortly thereafter I got a phone call from Sarah, and the gist of the conversation was that I wouldn’t go through this alone.
Having Sarah come to me was the best thing ever.

George A:
She’s always there to make things enjoyable in a sort of non-enjoyable world.

Tammy Moore:
We can only imagine as we’re navigating this devastating illness, that you will want somebody that’s been there, that will be able to help you, to be able to understand what’s coming next, to be able to be in your home and to be able to see what your next supports might be that you will require.

George A:
The disease that needs support, it needs it for the funding of the day-to-day aspect of dealing with the people who are suffering.

Tammy Moore:
Being part of Federated Health Charities is very important to ALS Canada. We are 100% donor-funded, and those dollars really help us to be able to assist people within the community.

Kristine L:
We would have had to buy all the equipment or maintenance and now that I’m on disability and George had to retire, we would be in big debt. I just think it’s the greatest organisation to help us across Canada.